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📚 Resources & Support

Organizations, communities, and help for GBM patients and families

🏥 GBM-Specific Organizations

Musella Foundation

THE best resource for brain tumor patients. Clinical trial search, treatment info, forums.

virtualtrials.org →

National Brain Tumor Society

Research funding, patient resources, advocacy.

braintumor.org →

American Brain Tumor Association

Education, support services, research funding.

abta.org →

Brain Tumor Foundation

Support groups, patient navigation, financial aid.

braintumorfoundation.org →

👥 Online Communities

r/glioblastoma (Reddit)

Active community of patients, caregivers, survivors.

reddit.com/r/glioblastoma →

r/braincancer (Reddit)

Broader brain cancer community.

reddit.com/r/braincancer →

Inspire Brain Tumor Community

Forum with thousands of members, searchable archives.

inspire.com →

Facebook Groups

Search: "Glioblastoma Support", "GBM Warriors", "Brain Tumor Support"

🔬 Clinical Trial Resources

ClinicalTrials.gov

Official US database of all registered trials.

Search GBM trials →

Musella Trial Search

GBM-specific, easier to navigate than ClinicalTrials.gov.

virtualtrials.org/clinicaltrials →

Cancer Commons

Free personalized consultation on trials and options.

cancercommons.org →

📖 Books

"Surviving Terminal Cancer" — Ben Williams (25+ year survivor's protocol)
"Keto for Cancer" — Miriam Kalamian (metabolic therapy guide)
"The Metabolic Approach to Cancer" — Nasha Winters
"Radical Remission" — Kelly Turner (survivor commonalities)
"The Brain Tumor Guide" — Al Musella
"Anti-Cancer" — David Servan-Schreiber

💰 Financial Assistance

Patient Advocate Foundation

Help with insurance, copays, financial hardship.

patientadvocate.org →

CancerCare

Financial assistance, counseling, support groups.

cancercare.org →

HealthWell Foundation

Copay assistance for specific medications.

healthwellfoundation.org →

NeedyMeds

Database of patient assistance programs.

needymeds.org →

🧠 Second Opinions

Getting a Second Opinion

A second opinion from a specialized neuro-oncology center is HIGHLY recommended.

You have the RIGHT to a second opinion
Good doctors EXPECT and encourage it
Many can be done remotely (telemedicine)
Bring all imaging (on disc) and pathology slides

Top Neuro-Oncology Centers (US)

Duke University Brain Tumor Center
MD Anderson Cancer Center
Memorial Sloan Kettering
UCSF
Johns Hopkins
Mayo Clinic
Cleveland Clinic
UCLA

💜 Emotional Support

Cancer Support Community

Free counseling, support groups, education.

cancersupportcommunity.org →

Imerman Angels

1-on-1 cancer support matching (connect with survivor/caregiver).

imermanangels.org →

Open to Hope

For grief and loss (caregivers who have lost someone).

opentohope.com →

🏠 Practical Help

Lotsa Helping Hands

Coordinate help from friends and family (meals, rides, etc.).

lotsahelpinghands.com →

Meal Train

Organize meal delivery from community.

mealtrain.com →

CaringBridge

Create a personal health journal to update loved ones.

caringbridge.org →

📱 Apps

CareZone — Medication management
Medisafe — Pill reminders
Cronometer — Nutrition tracking (for keto)
Keto-Mojo — Track ketones/glucose
Calm/Headspace — Meditation, anxiety relief